Grace Murphy Update from Mum Claudette 26/08/11

Admin stuff, CHAT ROOM and other links, how to pay/donate, post images, downloads, etc etc.
Got a question? LOOK HERE FIRST
Post Reply
User avatar
ROOKEY 10
Level 3 dot.orger
Level 3 dot.orger
Posts: 2199
Joined: Fri Aug 17, 2007 5:03 pm
Location: DEVON

Grace Murphy Update from Mum Claudette 26/08/11

Post by ROOKEY 10 » Fri Aug 26, 2011 12:09 pm

26th August 2011.

Hi Everyone!

Apologies for not contacting any of you sooner. Since our return from America we have been on an emotional and physio roller coaster! We had a fantastic 10 days in the New Forest and it was just what we all needed. For a change the weather was really kind to us and we had a busy 10 days. When we arrived Grace was still very weak and tired. On day 3 she began to pick up and our mission to keep her busy with cycling, walking and swimming was accomplished without her even realising she was doing her physio!

It was so lovely to see her smiling again and enjoying some of the new things her "new soft legs" would allow her to do. The main positives Ed and I have noticed so far is her new found stamina. Before she would get so tired just doing a little walk or cycle ride. This was not the case and we found it strange having to keep up with her for a change! Her balance is fantastic too, no more wobbles, no more falling or tripping. Even if she did fall off her bike she would just get back on it again. Before, that would be it for the day!

Her confidence has grown too, and she tried things she would never have done before. She was happy to go down into the swimming pool by herself, not holding onto anyone's hand. The list is endless on what she can achieve already, and some of them might seem a little trivial but to us they are a huge step forward. Getting in and out of the bath herself, being able to stand still without holding onto anything when I'm doing her hair. Walking up and down the stairs, holding on to her handrails but not crawling up and coming down on her bottom. Being able to walk up and down our two steps into our house, without holding to anything. Getting in and out of the car by herself. She's loving her new found freedom when she's doing her dancing around the house, keeps showing me "new moves" that she can do now and couldn't do before her "SDR procedure" - her words, she just loves the word procedure and never now uses the words operation! (One of the words she came home with from America)!

Everyday, we are making more progress. The physio is very hard on us all, and it's hard to make it as much fun as possible. When she has a "paid for proper physio session" she is a little angel, when it's just mum, well I might as well be the physio witch/devil! I grab every opportunity if she feels in the mood. All her physio's are really pleased with her and it's just so fantastic to see her lovely flat feet on the floor. She now wears night splints which she has adapted to well. Thought it was going to be hard to get her to wear them, but so far, so good. Actually, this morning, I had to tell her to take them off! She is wearing long splints for long distance, but just little ones if we're not going far. Hoping by the time she returns to school, she will be able to manage the short ones all day. She loves them as you can't see she's wearing them with her frilly socks over the top! She will need these for 8 - 12 months and then no splints! Just inserts in her shoes which we can get from America.

When we were in America some family friends helped and supported us so much, their daughter Becca works at an adjacent hospital to the Children's Hospital, she arranged for us to be interviewed by the hospital paper. They ran a fantastic article and Grace made the front page. When you have time, please take a look. It's great and should give you a real insight into how everything went in St Louis.
I have an incredible amount of work to do onto Grace's website, and had every attention to do this whilst we were there, but the time just ran away with us. Since we've been home, normal life plus physio appointments have kept me very busy, so I am going to start working on it tonight and will be able to tell you when it's all done. We have some amazing photo's I want to put on.

It seems an eternity that we were in St Louis, we are missing the friends we made very much and I am missing the hospital and especially the "therapy" department!

The next year is going to be tough on all us, but with Grace's determination and our hard work she is going to do just fine, we are positive that she is going to achieve everything she wants and more. We feel so very blessed we have been able to give Grace this opportunity and please remember it wouldn't have been possible without all of your hard work, encouragement and support also.

Shall keep you updated on progress and I'll let you know when the website is completely updated.

Lots of Love

The Murphys xxxx

Claudette Murphy
http://www.gracemurphysdrfund.webeden.co.uk/

jayp
Level 2 dot.orger
Level 2 dot.orger
Posts: 699
Joined: Sat Feb 03, 2007 1:13 pm

Post by jayp » Fri Aug 26, 2011 12:27 pm

excellent news :D

User avatar
TRFKAP
dotorgsponsor
dotorgsponsor
Posts: 1063
Joined: Wed Oct 17, 2007 4:40 pm

Post by TRFKAP » Fri Aug 26, 2011 12:30 pm

I am so glad to hear all is heading in the right direction, getting behind Grace was a rare moment of total community amongst QPR fans and we can all share in your pride of her toughness and how far she has managed to come already.

LBLOCK
Level 2 dot.orger
Level 2 dot.orger
Posts: 894
Joined: Sat Mar 17, 2007 5:50 pm
Location: West London, just outside Eastern Europe

Post by LBLOCK » Fri Aug 26, 2011 12:30 pm

This puts Joey Barton, twitter and all the other BS that goes on around football to shame.

Thanks for the update and it does my heart good to read that a QPR fan is doing well. Given the choice between contributing to some other fella who thinks he deserves a Bentley for kicking a ball around or donating to your daughters recovery is a no brainer.

Keep positive and focused on the path ahead
All your dreams are made when you're chained to the mirror and a razor blade

hoopsa72
Level 2 dot.orger
Level 2 dot.orger
Posts: 960
Joined: Sat May 10, 2008 3:32 pm

Post by hoopsa72 » Sun Aug 28, 2011 8:40 am

what an amazing little girl Grace is...so much courage for someone so young...Its terrific to read how well she is progressing and long may it continue...
Chris

User avatar
wrinklyhoop
2010/11 Sponsor
2010/11 Sponsor
Posts: 4591
Joined: Thu Feb 01, 2007 1:35 pm
Location: St Albans

Post by wrinklyhoop » Sun Aug 28, 2011 9:46 am

Lovely to read that, and think we played some part (however small) in helping Grace. She seems to be well on the road to a great result :)
Image

User avatar
Alvarado
Level 2 dot.orger
Level 2 dot.orger
Posts: 863
Joined: Wed Apr 18, 2007 11:08 am
Location: West Yorks

Post by Alvarado » Mon Sep 19, 2011 9:15 am

It's great to hear your good news and that Grace is responding so well. Thanks for the update, keep on keeping on!

Post Reply

Who is online

Users browsing this forum: No registered users and 1 guest