Grace Murphy Update / Operation will take place on 28th June

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ROOKEY 10
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Post by ROOKEY 10 » Fri Jul 08, 2011 3:27 pm

Hi Everyone!

Hope you are all OK? We have been busy since I last managed to e-mail you all with an update. All is going well. Grace is no longer in pain, and only needs a small dose of Calpol before each physio session at the hospital. She is much happier and even though she is frustrated with her progress we are happy with her progress to date. (Need to keep reminding her and ourselves that her op was only on the 28th June. Her determination is coming back to her slowly but surely.

She has achieved the following so far:-



No knee locking.
Her posture is greatly improved.
She is now able to stand unaided for around 2 mins and if she does wobble she is able to correct herself. She does not sway side to side as she used to.
She can now get up to standing from a seated position just using her legs and tummy muscles, does not need to hold onto anything at all.
She can now walk not holding our hands, still finds it difficult but is increasing her pace and the number of steps taken each day.
Her feet are mainly flat on the floor and her right foot no longer turns out, it is flat on the ground and she is not walking on the outside edge of it.
Her confidence is growing and we are encouraging her as much as possible, we know to well and realise that some of the issues we are having with her mobility since the SDR op is not the case that she can't physically do it, she can, it is her lack of confidence that is holding her back.

Today at physio she finally got to spend some time on the "trike" she went everywhere, with Mummy running behind her, hard to do in this heat! She has worked hard this evening too, with her stretches and also did some walking with Alex her "SDR Twin". They walked up and down the hallway together, tomorrow evening we are going to try the stairs!

Lot's of UK families stay at this hotel and it's really nice to catch up with them, and you end up bouncing ideas of each other. It's great for the SDR kids and also their siblings as they are able to play with each other. Grace had a friend over to "ours" this afternoon and they made "glitter fairies", it was everywhere but I was very chilled as a) it's not my carpet and b) unfortunatley, I don't know where the hover is! Teddy went for a swim with her little brother so it was great. A little bit of normal life in all this very strange environment.

She needs to work hard and keep focused, as do we. It's a fine line in getting her to co-operate, have fun and also not pushing her too much. She is loving having her Daddy with her 247 and they had a real giggle tonight, Ed doing all her exercises with him trying to work off his pasta and cheesecake from today!

She will be having her ortho surgery on the 12th July to lengthen her heelcords, hopefully it will be just for the day and she can come home to us in the evening. She was not too happy when she realised she would be having another op, and her actual words were "we are meant to be having a holiday after my SDR and now you want me to have another procedure" she just loves the word procedure! We really need to get her as strong as possible for this op, as it's going to set her back a little, so we shall be keeping busy!

Well, that's all our news. Fingers crossed the next update will include a lot more good news too!

Lots of Love

The Murphys xxxx

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Post by wrinklyhoop » Fri Jul 08, 2011 3:46 pm

Sounds good so far - didn't realise there was a second op. Well done so far Grace and family :)
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Post by Damien » Fri Jul 08, 2011 5:21 pm

Great news. Send her our love 8)

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Post by Rbee » Thu Jul 14, 2011 9:46 am

14/07/2011

Hi Everyone

Sorry for not updating you all sooner. We have all had some very manic days. As you know Grace was having her heel cord lengthening surgery yesterday.

She has been doing incredibly well with her physio at the hospital and also at home (or should I say our American hotel room)! We all went to the gym on Monday and she walked for a whole ten minutes on the treadmill going up hill a little bit, Ed was running next to her, I was the supervisor, Ted was lifting weights, yes really!

The surgery went well yesterday, we needed to be at the hospital for 7.00 a.m., she was very brave, just had a little wobble but the staff are so great, they made her smile as soon as the tears came. She went down for surgery at 9.15 a.m., and we were back with her by 10.15 a.m., in the recovery room, she was as snug as a bug and even though very sleepy, she managed to give us a smile. We were moved to the sixth floor, she slept to around noon, and they gave her some more pain meds and she managed a little drink and we were then allowed to take her downstairs for something light to eat. She choose a "Dairy Queen" which is like Mr Whippy, all rules have gone out the window since we've been here! We were discharged around 6.00 pm, just as the heavens began to open, came home and were all tucked up in bed by 9.00 pm, exhausted, but so very relieved that this is the end of any further ops, hopefully for the rest of her life.

She is very sore, very frustrated and rather miffed at Mum and Dad as she didn't realise this op was going to set her back so much. She is unable at present to put her feet flat on the floor (well she is, but won't as she knows it's going to hurt). She has dressings on the back of her calf muscles and you can see they are already a little bruised. It's really hard for her, she has worked so hard after the SDR op and now this has been thrown at her too. We had physio today and Michael seemed pleased with what she could achieve. He did manage to get her stand on her flat feet, with lots of support and get her to take a few steps, but she was not a happy bunny at all. He then let her go on her beloved trike and took her for a ride, whilst I sat in the therapy room and cried. (Did feel a lot better for it afterwards). She came back smiling and laughing which was lovely.

We have also picked up her new splints today, they are fab. She chose purple and green spots, that's my girl, all the other little girls have chosen white and pink, not our Gracie! After physio we had some lunch at the hospital and then went to the zoo for a couple of hours, Grace wearing her new splints and sitting very comfy in her buggy. It was so hot we were shattered when we got home.

The kids are now both in bed, Grace is wearing her night splints, she has never had these before, but they will give her extra stretch at night and also keep her feet in the right position. Wondering how long it will be before she asks for them to be taken off?

We are all OK, missing home, missing family, missing friends and part of us wants to get home now and the other want's us to stay here, wrapped up in our St Louis Children's hospital security blanket forever.

Lots of Love

C x

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Post by wrinklyhoop » Thu Jul 14, 2011 11:07 am

Great news - come on Grace - shame they had no splints with blue and white hoops :)
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Post by Loan Ranger » Fri Jul 22, 2011 9:10 pm

Hi
what news with Gracie. how she doing?
Didn't like the Premiership anyway.

Loan Ranger, Hi Ho Silver, Away!

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Post by ROOKEY 10 » Thu Jul 28, 2011 11:49 am

Grace Murphy and family are back from the USA safe and sound. Grace is making great progress but she does not feel that way herself about it at the moment, Bless her, because she is still quite weak and can't do all the things she could before her operations. We can celebrate and be very happy that EVERYTHING is moving in the right direction and that the operations were a success. For anyone who missed Grace's story unfold, QPR fans, Players, twitterers, the local community, family and friends raised £40,000 (yep £40k) in a little over 4 months (remarkable) for Grace to have her life improving "SDR" Operation in America. Well done everyone, amazing work. Grace, family and friends send another huge thank you and loads of love for all you have done for Grace. The link will take you to Grace's website that explains the story so far and over the coming months and years there will be regular updates on Grace's Progress. Thank You.

http://www.gracemurphysdrfund.webeden.co.uk/#

aniclap

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wrinklyhoop
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Post by wrinklyhoop » Thu Jul 28, 2011 3:48 pm

Great news that it all went OK, even if Grace can't see it like that just yet. Hope to see her on the pitch at HQ when she's up to it :)
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Post by hamerin » Sat Aug 27, 2011 7:55 am

What is the name of the surgery that allows a women to get pregnant? My friend wants to have a baby and she is 39. She doesn't have any kids and her and her husband is separated. What is the surgery when they put sperm inside, not the fertility thing, but when they uses sperm and makes kids? She not having sex so the fertility thing that would help him to make a baby wouldn't benefit her. Just need to know the name of the surgery that would help her get pregnant! Thanks.
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